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This film brings together the thoughts and experiences of ten older people with severe frailty and four family members and friends on what and who they feel is most important to them in living their lives well. We have grouped their responses into categories of need - identifying those elements that these older people have described as supporting their personhood, kinship and comfort.

This film was made during Covid-19 using an innovative method of recorded Zoom interviews; participants were supported in person throughout the process by their clinician. We thank each person for their willingness to share their lives at a time of great challenge.

The film has been edited to serve as an educational resource and you can access the film for this purpose by completing our submission form. There are two versions available:

1. Full version (17 minutes long)
2. Edited version (5 minutes long)

We’re keen to track the impact of this film and we would be grateful if you would allow us to contact you via email at a later date to ask you how you have been using the film and how it has informed your practice. If you are happy to do this, please select this option in the submission form.

Complete film submission form

• Evidence building and research in practice: increasing knowledge and engagement PowerPoint presentation (PDF)
• Suport available from the RDS PowerPoint presentation (PDF)
• Thinking outside the box...(PDF)

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• The ARC KSS ‘’ - See pages 11-12 for reviews relating to frailty/severe illness/end of life. Ludwig et al (2021) of particular interest if looking at the ethical aspects of involving older people. Covers the four principles: Autonomy, non-maleficence, beneficence, justice. 
• The ARC South London collection of resources. ‘’. Resources are groups under the headings ‘Involvement in research’, ‘Equity diversity and inclusion in research’, ‘Evaluating research’, ‘Research ethics’, ‘Implementing research into practice’. It also indicates if the resource is guidance, event, book/e-book, podcast, training, webpage or toolkit. 
• The ARC KSS . Contents include why and when to do PCIE, how to do PCIE including recruitment, EDI, facilitating meetings, ethics, feedback, impact. Examples and case studies are also included. 
• The ARC KSS . All PCIE resources gathered in one place. There is helpful information on how to get started with PCIE and a jargon buster.
• The ARC KSS co-production resources and information. There is a helpful leaflet for prospective PCIE called ‘’ There is also ‘’ which has case studies of previous projects involving co-production and may be helpful when setting up and thinking about how to include patients and public.
• PPIE contact details (PDF)
• Engaging older people with advancing frailty with evidence building: Learning, local links and  top tips (PDF) 
• How to RRS can help (PDF)
• ALLIANCE webinar (PDF)

Improving care for older people 

This visual minute brings together the thoughts and experiences of older people with severe frailty, family members and friends, health and social care staff, voluntary sector professionals and unpaid carers in regards to what they believe can improve care for older people living with severe frailty. 

Improving care (PDF)

Holistic assessment

This visual minute brings together the key elements unpaid carers and unpaid carer representatives believe matter most to the holistic assessment of older people living with advancing frailty.  

Holistic assessment (PDF)